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Jim Kelly will be headed to Washington, DC to ask congress for their support  on The Newborn Screening Saves Lives Reauthorization Act, which would reassure better screenings of hospitals for newborns.

Jim Kelly’s son, Hunter died at eight years old in 2005 from a fatal genetic disease that, if caught early, can be treated.

 

Authorizes the Secretary to have the Hunter Kelly Newborn Screening Research Program to: (1) provide research and data for newborn conditions under review by the Advisory Committee to be added to the Recommended Uniform Screening Panel; and (2) conduct pilot studies on conditions recommended by the Advisory Committee to ensure that screenings are ready for nationwide implementation.